On Monday, the University Children’s Clinic submitted a request to the RFZO for the treatment of a baby suffering from spinal muscular atrophy (SMA), who was diagnosed with the disease as part of the neonatal examination action plan, which has been carried out since April at the National Front Gynecology and Obstetrics Clinic.
“Within 24 hours of the decision of the RFZO Commission for the treatment of rare diseases, whose session is in progress, the RFZO will provide medicine with the aim of timely initiation of therapy,” said Fund director Sanja Radojević Škodrić.
He adds that the state has shown maximum readiness and commitment to improving the treatment process for SMA patients.
“This includes providing treatment to babies diagnosed at birth with the most up-to-date therapies and, most importantly, in the shortest possible time,” she explained.
Škodrić states that the therapy for the treatment of babies, who were diagnosed with SMA at birth, has been approved by emergency procedure until now.
“SMA is a serious disease, which progresses very quickly – that’s why it is necessary to start treatment as soon as possible, despite the high costs that the therapies require,” Škodrićeva concluded.
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